Credit: GoFundMe
TikTok influencer Hannah Campbell has shared the devastating news that her 10-month-old daughter, Elliana Rose, has passed away following a courageous battle with a rare and incurable genetic condition.
Elliana was diagnosed with Junctional Epidermolysis Bullosa (JEB), an extremely rare skin disorder, just two weeks after her birth. The heartbreaking disease causes the skin to be so fragile that even the slightest touch can lead to painful blisters, open wounds, and internal complications.
In an emotional video posted to her social media accounts, Campbell broke down as she spoke about the final moments of her daughter’s life. “She passed peacefully in my arms,” she said through tears. “She was so strong. She fought every single day of her short life with more bravery than most people show in a lifetime.”
@ellianas_journey A moment without the foam. Holding Ellie like this feels like a dream—something so simple yet so profound for us. 💕 Cherishing every second. #EpidermolysisBullosa #hospice #OurJourney #babytok #BUTTERFLYBABY #skindisease #babygirl #momsoftiktok ♬ original sound – ally salort
Throughout Elliana’s journey, Hannah used her platform not just to share personal updates, but to raise awareness about JEB. Her followers watched as she navigated the overwhelming challenges of caring for a child with the condition — the constant bandaging, the sleepless nights, the specialized feeding tubes, and the countless hospital visits.
Despite her grief, Campbell is determined to make sure her daughter’s life was not in vain. She has launched a powerful initiative, Elliana’s Hope for Healing, a fundraiser dedicated to supporting other families affected by JEB and funding critical research in hopes of finding a cure by 2030.
The response has been overwhelming. Thousands have rallied behind the cause, pushing the campaign past its original goal in just a few days.
Credit: GoFundMe
“No family should ever have to go through what we did,” Campbell wrote in her tribute. “Elliana taught me what it means to love unconditionally, to fight, and to never give up. This is for her. For all the children like her.”
As tributes pour in from across the world, Elliana’s legacy is already making waves — not just in the fight against JEB, but in the hearts of everyone touched by her story.
